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Survey

Towards a quantitative definition of Neurodiversity
Research Suggestions
 
Our survey is currently under active development, and we hope to have a public version out shortly. We want to make sure we’re asking all the right questions before we ask anyone to invest time and effort into filling it out. In the meantime, please submit
Research Suggestions
⁠
here!
Note: this survey is not currently subject to an IRB, and the answers provided are available to anyone looking at this document. This is a preliminary attempt to gather information and will be used towards an IRB-approved research project in the mid future.
Note that there is no personally identifying information in the survey, and your answers are 100% anonymous. (If you are logged into coda when you take the survey you’ll be given the choice to fill it out anonymously.)
Check the
Scale
⁠
for information about how to answer on the questions that want a value from 1-10. Spoiler alert: most of your answers should probably fall between 4-6 unless you experience something significantly differently than the general population.
⁠

Sample Data

Here’s a partial sample dataset. The survey is not currently accepting new data, and the existing data is not really valid because a bunch of questions were added after most of the answers were already submitted but I leave it here as a proof of concept.
Total Replies in Sample Dataset:
52
⁠
⁠
Neurotype:
Autism
⁠
⁠
Trait:
sound_seeking
⁠
⁠
Comparing Selected Trait by Neurotype
1
⁠
Qualitative Survey Feedback
3
Search
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
28
29
30
31
32
33
34
35
36
37
38
39
40
41
42
43
44
45
46
47
48
49
50
51
52
53
54
2
age
38
ancestry
White
gender
male
Is Genderqueer
false
country
United States
hours_worked
30
income
$200,000.00
neurotype
Autism
ADHD
CPTSD
special_interest
suggested_research
feedback
Show hidden columns
⁠
⁠

The currently proposed survey (v0.14) captures some demographic data as well as asking for
Scale
⁠
or
binary choice data
⁠
values for each of the following
77
⁠
fields:
Proposed Measurements
1
aspect
concept
field name
field type
sensitivity
7
hearing
sound_sensitivity
Scale 1-10
vision
visual_sensitivity
Scale 1-10
taste
taste_sensitivity
Scale 1-10
smell
smell_sensitivity
Scale 1-10
touch
touch_sensitivity
Scale 1-10
emotion
emotion_sensitivity
Scale 1-10
stress
stress_sensitivity
Scale 1-10
seeking
6
hearing
sound_seeking
Scale 1-10
vision
visual_seeking
Scale 1-10
taste
taste_seeking
Scale 1-10
smell
smell_seeking
Scale 1-10
touch
touch_seeking
Scale 1-10
emotion
emotion_seeking
Scale 1-10
processing_speed
7
hearing
sound_processing
Scale 1-10
vision
visual_processing
Scale 1-10
taste
taste_processing
Scale 1-10
smell
smell_processing
Scale 1-10
touch
touch_processing
Scale 1-10
emotion
emotion_processing
Scale 1-10
reading
reading_speed
Scale 1-10
attention
7
hearing
sound_attention
Scale 1-10
vision
visual_attention
Scale 1-10
taste
taste_attention
Scale 1-10
smell
smell_attention
Scale 1-10
touch
touch_attention
Scale 1-10
emotion
emotion_attention
Scale 1-10
energy
energy_attention
Scale 1-10
regulation
3
attention
attention_regulation
Scale 1-10
emotion
emotional_regulation
Scale 1-10
impulse
impulse_regulation
Scale 1-10
abstract reasoning
5
written language
abstract_verbal_reasoning_written
Scale 1-10
spoken language
abstract_verbal_reasoning_spoken
Scale 1-10
mathematics
abstract_mathematical_reasoning
Scale 1-10
emotion
abstract_emotional_reasoning
Scale 1-10
space
abstract_spatial_reasoning
Scale 1-10
frequency
10
stimming
stimming_frequency
Scale 1-10
meltdown
meltdown_frequency
Scale 1-10
shutdown
shutdown_frequency
Scale 1-10
physical tics
tics_physical
Scale 1-10
verbal tics
tics_verbal
Scale 1-10
seizures
seizures
Scale 1-10
stress
stress_frequency
Scale 1-10
mutism
mutism_frequency
Scale 1-10
defensiveness
defensiveness_frequency
Scale 1-10
masking
masking_frequency
Scale 1-10
intensity
5
hobby
intensity_hobby
Scale 1-10
emotions
intensity_emotions
Scale 1-10
sensory
intensity_sensory
Scale 1-10
focus
intensity_focus
Scale 1-10
period
intensity_period
Scale 1-10
regularity
1
period
regularity_period
Scale 1-10
amount
2
energy
energy_levels
Scale 1-10
executive function
executive_function
Scale 1-10
health
1
gut
gut_health
Scale 1-10
ease
4
communication - being understood
being_understood
Scale 1-10
communication - understanding others
understanding_others
Scale 1-10
routine
routine_ease
Scale 1-10
masking
masking_difficulty
Scale 1-10
comfort
4
social - groups
social_group_comfort
Scale 1-10
social - individual
social_individual_comfort
Scale 1-10
social - strangers
social_stranger_comfort
Scale 1-10
social - conflict
comfort_conflict
Scale 1-10
stress
4
travel
stress_travel
Scale 1-10
isolation
stress_isolation
Scale 1-10
social
stress_socialization
Scale 1-10
masking
stress_masking
Scale 1-10
impact
4
energy
energy_accommodation
Scale 1-10
routine
routine_importance
Scale 1-10
depression
impact_depression
Scale 1-10
anxiety
impact_anxiety
Scale 1-10
medication
4
depression
medicated_depression
Binary
anxiety
medicated_anxiety
Binary
adhd
medicated_adhd
Binary
cannabis
medicated_cannabis
Binary
narrative
3
control
narrative_control
Scale 1-10
generation
narrative_generation
Scale 1-10
​
​
Scale 1-10
⁠


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